Also, with my heightened sense of smell, unless you take a conscientious shower(thankfully, Don, Amy, Manfred, Jack, & Gine all have a touch of OCD) Right Before you come over, you smell like a goat to me.
Though those who love me have said please don't, I insist on telling potential clients I have schizophrenia, because I think they have a right to know. Even in the medical community this leaves some thinking more of me(sociopath), & some thinking less of me(IQ of a tater tot), in all the wrong ways. But then, many non-schizophrenics have had to deal with condescending intellectual inferiors in the workplace too...so never mind. I'm still a schizophrenic, just not their conception of one. And, often, not my conception of one either.
Last week I spent a few nights with Don, his daughter Amy, Manfred & Jack(Amy called them: Guess which boyfriend isn't the ex nights ;o) parsing through the last 6 months of everything.
Medication & credible, competent therapy(I truly had an abysmal first therapist) keeps schizophrenia on a leash about 80% of the time. But still, at best I view it as a bomb at rest. I very much realize that we all have our leashes & we all have our bombs. You come to a level of acceptance, but it is at times a weary, flat acceptance that has burned down to a dull ache.
Too many thin wires over too many long drops. Too many people who say I told you so when in actuality their lips were moving but they told you nothing. Then once again you start to see the subtle(or not so subtle) signs of emerging mental health problems. You(ok, I) think awww f--k, I've done this before & before that & before that, but it never gets any easier.
Except that each time the floor stops being on fire, it has become much easier, taken collectively, in the past 6 months. The pain & pressure & hauntings have names now. They are on reset & replay so you've heard the song in its entirety 1000 times...& it just isn't as much of a siren any longer. Working knowledge. Discipline & endurance. Meds & therapy. People who love me fully & consistently.
I do, an increasing percentage of the time, open myself up to the warm accessibility of those who refused to stop loving the whole of me these past several years. Needs & doubts & thoughts of burdening still twist, but not as often or as harshly. I can't get my house back(yet), & I don't want the money back(I'm resourceful about earning more), but I can love & work & swim ~even dance(thanks Peter & Kat. i forgot i could kick that high) & breathe & run.
I'm able to do all of the things necessary to not become one of those people who cannot succeed in the world~ so they take their frustrations out on those who can. (you find a lot of them around election time)
This isn't the life I had expected to have, but in truth, I was a touch too much of a hyper-efficient windup doll before. Intermittent psychosis is not a gift, but I'll be damned if somewhere in all this I didn't learn to relax a little more....& let the people who love me, help me. Not all the time, not most of the time, but slowly, much more often than I had realized.
Saturday, September 15, 2012
There is only so much mileage you can get off of being intuitive in disturbing ways.
Labels:
Amelia,
brain atrophy,
Don,
Gine,
Jack,
love,
Manfred,
medical consultant,
schizophrenia,
therapy,
Trust
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Ah ha! this one is good. I am probably getting smarter, I think I understand it. LOL It is good that you can trust or allow someone that shares your love to help.
ReplyDeleteBUT, with a heightened sense of smell you would be in trouble on the Backpacking end of the world. A bath a week if you are lucky, unless you are my Sherry then since she discovered 'baby wipes' she is a happy camper. Off into the woods for her bath at the end of the hiking day.
Love ya and I did enjoy the read!!!
Jack, you are smart & even better than that..you are wise. ~Mary
DeleteMary, I'm going to have to read this post several times because I was nodding along in agreement (even when you said you had schizophrenia - I'm not sure what that means except I haven't been diagnosed but I sure don't feel normal) anyway .... the part that jumps out at me is when you said "Too many thin wires over too many long drops. Too many people who say I told you so when in actuality their lips were moving but they told you nothing.
ReplyDeleteOMG. Were you inside my brain just now?
Too many thin wires over too many long drops. You painted of what's inside my head.
OOPS, a typo at the end of my comment but figure it out. I also wanted to say showers are a good thing. =)
ReplyDeleteIt's amazing how life can go in such different ways than expected, but with each change and turn there's an opportunity to learn. I really look up to you and how you've handled situations.
ReplyDeleteI need to learn how to relax; that sounds awfully nice :)
P.S. I love that about the heightened sense of smell. Melynda (my best friend) has that too--all the coolest people must have that ;)
I hate that it's something that lies in wait all the time, but I'm glad that in some way the repeating cycle helps you handle each round a little better. It's a blessing that you allow the people around you to support you also.
ReplyDeleteWe feel more burdened when we are afraid you don't want to burden us. Got it? I love you so much.Am.
ReplyDeleteDo you really have schizophrenia? I think it's awesome you're so open about it. A lot of people I admire use their weaknesses as strengths.
ReplyDeleteYes, I do. Late onset brought on by brain atrophy. ~Mary
DeleteSome days I have a heightened sense of smell, but it always seems when I need it, it's not there.
ReplyDeleteI guess I didn't realize this was something you could feel coming on. Knowing, seems to me like it would be a good thing and I think you deal with things probably better than you think you do. Better than most of us do. Letting those in who love us, help to keep us grounded.... Right??
As far as it being something I can feel coming on~I cannot always tell the difference between what is real & what can be mistaken, in psychosis, for authentic, but tell-tale signs that have been repeated ad nauseam over time do become barometers on certain occasions. Then the pull into the abyss is easier to resist. Meds, good therapy, behavioral techniques & more often(lately) relying on warnings from loved ones~who point out the signs~then trusting those warnings. I'm getting better at bringing this all together, & at taking the helping hands that are offered to me.
DeleteBut I would never want it to seem like I am saying schizophrenics can Just Tell when this is happening if they try hard enough...it is more complicated than that.
Still, other times my brain feeds the suspicions, dark fantasies & disrealities & I have no clue it is not all exactly as I am perceiving it to be.
Like Sherry, I found myself seized by recognition and oh so happy that you have those around you who have still loved you through it all. Man, I strive to be like that... and that is why it wounds me whenever someone I thought was on "Team Mark" instead pulls an "Et Brute" and I feel more like Caesar.
ReplyDeleteDid I mention how happy for you that I am? I mean, I deal and I sincerely like my life, but I also know how narrow the ledge that I walk is in my life. So whenever I hear of someone who needs to find and have a balance for them to be necessary and involved in the lives of others... it is not that anyone really DOESN'T want to be a part of someone else's life... we are social creatures... but it is a part of the complexities of life that leaves us needing others when we are vulnerable and fighting our our issues, personal or inherited, and trying to manage to connect with others on the narrow strip of common understanding that is available to those for whom full understanding (what IS that anyway?) is no longer an option for people for whom it is not an option.
This was a really good and positive entry. I am so glad for you and I hope that it continues for a very long time... you deserve it and it is a chance to have a wonderful Thanksgiving, a wonderful Christmas, and fantastic New Year!!
Dear Mary, you have been fighting a fierce battle--not only within but without. And I am so relieved and happy for you that you can write this posting and embrace both what has been and what will be. You truly are an inspiration to all of us who read your blog. The sharing of what you have gone through and of its pitfalls and terror has taught me so much. Thank you. Peace.
ReplyDeleteI had way too much self reflection, not owning my disability or accepting that part of myself in the beginning. Took me years to get some kind of handle on things, enough to say - this is your life, it's what you have to work with. Whatever else it's mine.
ReplyDeleteI think when things like my deafness and your schizophrenia storm in - we either roll over and give up or do what you're doing, take it one day at a time and learn to live with it. (Hugs)Indigo
Your last words are very wise. You will benefit by this path. . . .psst! other people are not 'sane' just unimaginative and not aware of the fullness around us. You are good. you will be good. Enjoy being you and you will continue to be a winner in life, my friend!
ReplyDeleteAloha from Honolulu
Comfort Spiral
=^..^=
> < } } ( ° >
We can dance!!
ReplyDeleteAlso, I love your honesty, so please DO.
Love it, love it! Your honest journey helps me. And feeling gratitude helps not only the one effected, but those who love them.
ReplyDeleteI remember being told "tough love" and all it's variations. Tried that. Didn't help anyone.
Decided to try love, patience, and tangible help (like scheduling psych visits, finding ways to get discount meds, shutting up and LISTENING, etc). That worked better.
This is a story of hope and resilience. People get better. Loved ones can help. Stop the "powerless" talk!
You are protected and cared for. It takes a while to firmly grasp the full scope of how love's influence helps us. We are all flawed and imperfect but you write about it better than others do.
ReplyDeleteHz
Very, very moving.
ReplyDeleteIt isn't easy for independent people to learn to accept help, but sometimes it enriches both the giver and the one who receives.
ReplyDeleteAnd all the time I thought you were a madwoman!
ReplyDelete(Sorry..... :-)
Nothing in life comes easy; I know it's a platitude but nevertheless true.
Sometimes I wish the struggle were over but then there are the good days and sometimes I even get on with people. Amazing!
'I'm still a schizophrenic, just not their conception of one. And, often, not my conception of one either.'
ReplyDeleteI read this and loved it but then I read this:
'You come to a level of acceptance, but it is at times a weary, flat acceptance that has burned down to a dull ache.'
Such a perfectly-articulated capture of the demons we each fight, Mary.
I read the rest of your post with great interest and have finished reading your words feeling like I've come in contact with something of true substance amidst the excessive noise of our milieu. I love you for writing all you do, here. Please keep allowing us to grow with you.
This answers questions I was afraid to ask as well as questions I hadn't even formed.
ReplyDeleteGine is a touch ocd? How about her brother Kenn? Mary, you didn't know him, but everyone loved Kenn. "You haven't eaten? Drink water. Food is no good for the dance." Ahahahahaha. He used to chase us out of Studio 54. "Don't give it away free."
You need me for guidance. Take it from your elder. Once men reach my age they ALL smell like goats.
-Jess
I love your metaphor of the bomb at rest. Very apt!! Living with any form of schizophrenia of bipolar is very much like walking through a mine field. You never know will you'll step on one that will blow your entire life up in disarray and destruction.
ReplyDeleteP.S. -- Somehow I didn't have your blog on my blogroll, but you're proudly listed, now!! Have a great day!!! :)
ReplyDeletei dont know that many of us get the life we expect you know...but i love that you are not letting it define your boundaries for you in a negative way...smell like a goat eh? err...smiles...you cracked me up today...full of commas
ReplyDeleteI very much realize that we all have our leashes & we all have our bombs. You come to a level of acceptance, but it is at times a weary, flat acceptance that has burned down to a dull ache... i so know what you mean with this...and it's true.. the magic is to see the boundaries but then stretch beyond and not allow the illness or circumstances to beat us into a corner..
ReplyDeleteYou're amazing. I think about you often. I don't know if you knew that--that you give people strength.
ReplyDeletexx
(formerly seeking elevation)
I want to run over to the phone to return all my mom and sister's calls, call my doctor and get on my anti-psychotics again. I fell off the wellness wagon in 2011 and you pushed me back on with this.
ReplyDeleteI visit from a mental health NJ site. They link to you or I'd never have found you. I search for schizophrenic blogs but yours never came up.
I guess we all have the potential to go one way or another in our lives. I have a brother who is an institutionalized schizophrenic. He's been in care for over 30 years now. Most of the time I can barely relate to him and I rarely see him since I live over 2000 miles away from him. The mind can be such a mystery.
ReplyDeleteLee
Tossing It Out
The Irony of Labels (I,m thinking specifically of "schizophrenia" here) Is they muddy the water rather than clear it.(a) everybody has their own subjective view of what it means +(b) we begin to see the label not the person its nailed onto.
ReplyDeleteI <3 u kiddo!
ReplyDeleteWow! ol' blogging friend this is a benchmark entry. I wish you strength.
ReplyDeleteCaregivingly Yours, Patrick
hey you...hope you are doing well...
ReplyDeleteyes we all have our leashes and bombs, how true. it does take time to get all our ducks in a row and then there are always a few feathers flying another day, the dance goes on. Glad to hear you are doing well, you have an amazing way of 'seeing' life and those living it.
ReplyDeleteThis is such a beautiful post. You just amaze me, every week I come back to your blog and I'm inspired by yout thoughts. I loved the line, "we all have our leashes & we all have our bombs." Stunning post.
ReplyDeleteI am really glad to read this upbeat post. "We all have our leashes & we all have our bombs" is one of the truest statements I've read. I hope things can keep getting better and that you have more bright days than dark days.
ReplyDelete